I couldn’t stand the greying hair anymore, so back to my mermaid green (at least it’s vegetable dye, so it’s not a permanent commitment) I doubt I’ll be able to keep it up in the summer months. I get bad migraines and you have to let this dye soak in overnight with a shower cap on, (plus it takes some energy). I found I couldn’t do it last summer….but its a tempoary reprieve from the salt and pepper, which I love on others but not so much on myself. I wish it would just get more solid white areas, I’d like that better…but it is what it is. I took a whole bunch of pictures of us and I don’t like all of the ones of myself, but Ms. Daisy Mae looks so adorable in all of them, so I’ll post them. (and stop being vain) Isn’t she such a pretty kitty? She has a ton of personality too For better or worse! lol) She is VERY intelligent.

I just heard this song on the radio, (It’s one of those songs I love but just never knew who sang it.) I guess it was used it the movie ‘Trainspotting’. I still think about that movie. It was so well done, terribly sad and tragic, but brilliant acting in it. It is a great movie to expose the horrors of drug addiction. (as if there aren’t countless horrors to that issue, and milllions of reasons people end up there). I’m thankful that I have never had that problem. (I have others for sure, don’t we all?), but never that one. My heart goes out to all those who are struggling with drug addiction (or any addiction for that matter)

I wish each and every one of the members of the NIH who have stood to block progress and cloud truth would come down with ME/CFS… (the most severe form for Francis Collins and Dr. Walter Koroshetz…)shame on them! : ( …and, I hate to say it, but Shame on Dr. Anthony Fauci too (regarding ME/CFS and his damage to research in the early 2000’s). I know he has openly spoken up in awareness/support of ME/CFS and stated that Long Covid appears to be extremly similar, if not the even the same disease) and I do greatly appreciate his voice of sanity regarding Covid information, but we really could’ve used his help then and he certainly could step up to the plate now in our defense. I am so disgusted and disappointed with the NIH:

I think in the above photos I took today I look properly pissed off, so I will include here (what I think of the NIH, ….not much.

I’m not sure why but I am having trouble sharing the article. If anyone is interested in reading about the latest big fail of the NIH for people with ME/CFS, go to ‘Health Rising’ and read Cort Johnsons article titled: ‘Epic Fail’…Cort always tries to put a positive spin on things and has in the past given the NIH more benefit of the doubt than many of us long term sufferers can stomach, but even he can’t find anything positive to say about this latest BETRAYAL, other than that we need to bypass the NIH and consider them to be nonexistent for us at this point, (as they have shown us they are liars and have no intention of helping us ever), we now need to bypass them and go over their heads, we need to focus on Congress. Congress has actually begun to realize the ME/CFS community is in dire staits and is no longer willing to accept the shitty dehumanizing treatment that has been our fare for decades.

My son Jack just sent me these. He’s at his friends appartment,(several of his friends live there), and this is one of the communal ‘appartment’ cats they all share. I guess the cat likes Jack!

Doesn’t my son have the most beautiful eyes? He said he doesn’t particularly like the hat, but he grabbed it to protect his head. Personally, I kinda like the hat….it looks much cleaner than his favorite baseball cap! Either way, he is a handsome boy, (and a sweet boy) I’m so proud of him.
February 14, 2022