#Inktober52, Week 14, Prompt: ‘Eye’ (Lucy Liu’s eye= our cairn terrier ):
Something many people are not aware of, we ‘generally speaking’ die about 20 years earlier than the general population. I’m not sure if it is an innocent and blissful disregard or more malicious in intent, but nonetheless, it is often very demoralizing and incredibly hurtful the way people with ME/CFS are treated. So, if you are curious, read on….
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5218818/
Also of note, when you actually see what goes on in the community of people with ME/CFS, there really are loads of cases where people die of organ failure, renal failure, seizures, stroke, heart etc…with heart attack, cancer and suicide being the most prevalent. The thing that rarely gets mentioned publicly is that the suicide was driven by the end result of having this disease, not always depression, and if it is depression driving the final act, it was born as an end result of the disease. I think people just often find the whole situation too daunting with little public support as to the sheer enormity of the bleak reality of this disease…if we appear ‘o.k.’ then surely we are feeling ok….NOT so!
And then there are all of those other deaths, which 9 times out of 10 are attributed to heart disease ,cancer, organ failure etc…and yet these same people often suffered for YEARS with ME/CFS before subcoming to the heart disease, cancer, etc…yet the obituaries gloss over or even fail to mention the ME/CFS which really was the sneaky silent killer lurking for years. This angers me greatly, because I feel it should be known the true cause of death (or at least a major contributing factor) was the disease that no one wants to even acknoweledge exists. It is such a weird reality to live in. If we even get cancer or some other illness, I have noticed we are often not treated as well or with the same amount of care or compassion as the person who never suffered for years on end but ended up with the same diagnosis of heart disease/heart attack, cancer etc….It is a very weird thing, but believe me, it IS a thing. I used to think I must be being paranoid about it, but I’ve witnessed it too many times. Its a very weird thing, but people DO do this to us. Maybe its because we’ve been ill so long they have become desensitized. I don’t understand this phenomenon, but I can tell you, it is very real.
Plus you gotta love all the helpful advice from others who haven’t got a clue. I think maybe we just get too used to hiding our pain and trying to be as normal as possible so we don’t interfere with other plans and lives too much. I know there are plenty of other horrible diseases and ailments out there, but there is some special kind odd sick bullshit that goes on with this disease. Everything is backward, you exercise, you feel worse. You eat like a normal person, you feel wose…its like you are damned either way.
I remember hearing this song playing in the house. My mom loved Helen Reddy. This is a powerful song and I can see and understand now why mom liked it so much. I think it will always remind me of mom, which says alot about my mother, (in a good way). This is a great anthem for young girls and women everywhere. It is just as revelant today as it was back in 1971 when it was recorded. Unfortunately We still have a very LONG way to go as a society on womens equality, but things are better now than they were back then:
I just loved listening to these two songs on the radio when I was really little. I remember I’d be in the car with my parents and these songs would come on and I just loved them. They are great songs. I mean, who doesn’t love neil diamond?, and although I’m not that familiar with Glen Campbells music, this song is great!
#Inktober52, Week12/Prompt: ‘Break’ 2 versions:
Leo:
Just…wow! such a talent!:
Look this up and watch it, what an amazing voice!
Douglas Mills Jr sings “Strange Fruit” on American Idol Season 20 Auditions March 20, 2022 episode. “That was superb,” said Lionel. “You’re a superstar, you … Continue reading
I was looking back on some saved emails that I just can’t bear to delete. This is a video My friend Mark Robinson sent Me two years ago. About a week prior to his passing on March 25th. He said it made him reminisce about rock climbing with his friends. (This was not his video, just one he saw that made him think back to climbing there) I really Miss you wherever you are Mark. I know it must be a good place. You, like many pets and people I have known and cared about or loved must be somewhere full of light and happiness…I wish I had not argued with you prior to your passing. I know we had gotten past our disagreements on pitbull dogs (you were so convivced they were all bad dogs, and I was so convinced it is 90 plus percent the way people train, handle and treat these dogs…I’m sure we would still disagree, yet, if I’d known your state of mind, I would have just agreed with you or changed subjects…well, I know you held no angst in your heart towards me as you had your brother send me that unbelievable gift from beyond the grave) I miss you mark. I hope you are climbing mountains.
#Inktober52, Week11, Prompt: ‘Lush’
