I am not a severe. (Not entirely bed bound or stuck in my room), but I am in bed a lot of time during the day. I have to pace and watch my energy output. I am home most of the time. The grocery store and Drs. appts are my main outings these days. Yet, I am grateful that I am not trapped forever in my bed in one room as so many others are. I am posting this as today is Aug. 8th Severe ME/CFS awareness day. I also post in memory of my dear friend Mark who was badly afflicted with this disease and took his own life 2 years ago, and for all the others out there who have done the same. I feel hope is on the horizon, but it will not be soon enough for many.

I listened to this audio book for teens, (the cover drew me in) called “Speak”…it was compared to another teen book called “13 reasons why” which a librarian had recommended to me to read. I had told her that I like the creativity of a lot of the books I’ve read that were written for teens. Anyways, although “Speak” was a decent book on the dark subject of rape, I thought 13 reasons why was much better. That being said, perhaps this will be more relatable to some young people , and it is a subject that needs various authors and perspectives. My favorite thing about the entire book is the afterword. I will share it here:

I love this, so true…words to live by:

In her own words;

Judi Dench

“Don’t prioritise your looks my friend, as they won’t last the journey.

Your sense of humor though, will only get better with age.

Your intuition will grow and expand like a majestic cloak of wisdom.

Your ability to choose your battles, will be fine-tuned to perfection.

Your capacity for stillness, for living in the moment, will blossom.

Your desire to live each and every moment will transcend all other wants.

Your instinct for knowing what (and who) is worth your time, will grow and flourish like ivy on a castle wall.

Don’t prioritise your looks my friend,

they will change forevermore, that pursuit is one of much sadness and disappointment.

Prioritise the uniqueness that make you you, and the invisible magnet that draws in other like-minded souls to dance in your orbit.

These are the things which will only get better.”

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